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Idelvion is a medicine used to control and prevent bleeding episodes in people with hemophilia B (also called congenital factory IX deficiency or Christmas disease). Idelvion is also used during surgery. Idelvion is administered intravenously (directly into your vein).
How does this medication work?
Hemophilia B is a type of bleeding disorder that prevents blood from clotting normally. Idelvion works by replacing a clotting factor called factor IX, helping your blood to form clots and decreasing bleeding episodes.
What are the beneficial effects of this medication and when should I begin to have results?
What: Idelvion may reduce the number of bleeding episodes when used regularly.
When: Everyone responds differently to treatment, so try to be patient and follow your healthcare provider's directions. It is important that you use Idelvion exactly as your healthcare provider has prescribed.
How do I know it is working?
Your healthcare provider may perform certain tests to check how well this medication is working.
The following is not a full list of side effects. Side effects cannot be anticipated. If any develop or change in intensity, tell your healthcare provider as soon as possible. Only your healthcare provider can determine if it is safe for you to continue taking this medication.
More common side effects may include: headache.
Less common side effects may include:
Allergic reactions, with symptoms such as rash, hives, itching, tightness of the chest or throat, difficulty breathing, dizziness, nausea, or decreased blood pressure.
Increased risk of forming abnormal blood clots in your body, with symptoms such as chest pain, difficulty breathing, leg tenderness, or swelling.
Your body can make antibodies, called inhibitors, against factor IX which may stop Idelvion from working properly. Your healthcare provider may need to test your blood for inhibitors from time to time.
Do not use Idelvion if you are allergic to it, any of its ingredients, or to hamster proteins.
Tell your healthcare provider about all prescription, over-the-counter, and herbal medications you are taking before beginning treatment with Idelvion. Also, talk to your healthcare provider about your complete medical history, especially if you have been told that you have inhibitors to factor IX (because Idelvion may not work for you).
The information below is based on the dosage guidelines your healthcare provider uses. Depending on your condition and medical history, your healthcare provider may prescribe a different regimen. Do not change the dosage or stop taking your medication without your healthcare provider's approval.
Adults and children: Your healthcare provider will prescribe the appropriate dose for you, based on the weight and the type of bleeding episode or surgery.
Use Idelvion exactly as prescribed by your healthcare provider. Do not use it more often or stop using it without first talking to your healthcare provider.
Administer Idelvion at room temperature and within 4 hours of reconstitution.
Please review the instructions that come with your prescription on how to properly use Idelvion.
Do not attempt to self-infuse Idelvion unless you have been taught how by your healthcare provider or hemophilia center.
No significant interactions have been reported with Idelvion at this time. However, always tell your healthcare provider about any medicines you take, including over-the-counter medications, vitamins, and herbal supplements.
The effects of Idelvion during pregnancy and breastfeeding are unknown. Tell your healthcare provider immediately if you are pregnant, plan to become pregnant, or are breastfeeding.
Idelvion should be used under special circumstances determined by your healthcare provider. If you miss your scheduled dose, contact your healthcare provider or pharmacist for advice.
Store at room temperature or in the refrigerator. Do not freeze. Protect from light.
In the event of a medical emergency call your doctor or 9-1-1 immediately. In the event of overdose, call your doctor or poison control for further instructions.
National Poison Control#: Call 1-800-222-1222
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