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Kanuma is a medicine used to treat a condition called lysosomal acid lipase deficiency (a genetic disorder caused by a deficiency of an enzyme that may lead to multi-organ damage). Kanuma is administered intravenously (directly into the vein).
How does this medication work?
Kanuma works by replacing the deficient enzyme in people with lysosomal acid lipase deficiency.
What are the beneficial effects of this medication and when should I begin to have results?
What: By replacing the deficient enzyme, Kanuma may help to improve your condition.
When: Everyone responds differently to treatment, so try to be patient and follow your healthcare provider's instructions.
How do I know it is working?
Your healthcare provider may order tests regularly to check how well this medication is working.
The following is not a full list of side effects. Side effects cannot be anticipated. If any develop or change in intensity, tell your healthcare provider as soon as possible. Only your healthcare provider can determine if it is safe for you to continue taking this medication.
Infants with Rapidly Progressive Disease Presenting within the First 6 Months of Life
More common side effects may include: diarrhea, vomiting, fever, runny nose, low red blood cell counts, cough, common cold, hives.
Adults and Children
More common side effects may include: headache, fever, sore throat, common cold, weakness, constipation, nausea.
Less common side effects of Kanuma may include:
Serious allergic reactions, with symptoms such as chest pain or discomfort, wheezing or trouble breathing, rash or hives, red eyes, swelling of the eyelids, rapid heartbeat or breathing, or runny nose.
Your healthcare provider will not administer Kanuma to you if you are allergic to it or any of its ingredients.
Tell your healthcare provider about all prescription, over-the-counter, and herbal medications you are taking before beginning treatment with Kanuma. Also, talk to your healthcare provider about your complete medical history, especially if you have an egg allergy.
The information below is based on the dosage guidelines your healthcare provider uses. Depending on your condition and medical history, your healthcare provider may prescribe a different regimen. Do not change the dosage or stop taking your medication without your healthcare provider's approval.
Adults and children ≥1 month: Your healthcare provider will prescribe the appropriate dose for you based on your body weight.
Your healthcare provider will administer Kanuma to you.
Do not miss any scheduled follow-up appointments with your healthcare provider.
No significant interactions have been reported with Kanuma at this time. However, always tell your healthcare provider about any medicines you take, including over-the-counter medications, vitamins, and herbal supplements.
The effects of Kanuma during pregnancy and breastfeeding are unknown. Tell your healthcare provider immediately if you are pregnant, plan to become pregnant, or are breastfeeding.
Kanuma should be given under special circumstances determined by your healthcare provider. If you miss your scheduled dose, contact your healthcare provider for advice.
Your healthcare provider will store this medication for you.
In the event of a medical emergency call your doctor or 9-1-1 immediately. In the event of overdose, call your doctor or poison control for further instructions.
National Poison Control#: Call 1-800-222-1222
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